Vatican City, 29 February 2016 (VIS) – Today marks the IX World Day of Rare Diseases. On the occasion, Archbishop Zygmunt Zimowski, president of the Pontifical Council for Health Care Workers (for Health Pastoral Care) wrote a message entitled “The Patient’s Voice at the Centre. Join Us in Making the Voice of Rare Diseases Heard”. It emphasises how, for years, this dicastery has closely followed the various initiatives for those affected by such diseases, as well as focusing on their families, who are sometimes the only ones who give voice to a problem that should not be ignored by the various civil, scientific, and pastoral agencies.
“This global initiative”, the prelate explained, “which aims to give proper emphasis to these diseases and to increase knowledge, also finds growing interest in the Church, so that those who, although suffering from diseases whose incidence is minimal or rare numerically, are not abandoned or isolated. They certainly cannot leave us indifferent. Indeed, their condition, as the theme chosen for this 9th day indicates, cannot but find echo in our hearts and in appropriate research and care”.
“In particular”, he specified, “this means making these persons more and more the protagonists, equipped with the necessary reference points and, at the same time, raising the awareness of the competent authorities, health professionals, pharmaceutical industry, and anyone who has a sincere interest in rare diseases. All in order to break the curtain of silence or exclusivity that is likely, in many cases, to hide a problem that, however, concerns the whole of society”.